Introduction Terminology

Relationships with anyone Relationships with doctors

Desires … … leading to Care Systems
Closing phase of life

Lessons learned Random statistics

Introduction

If, three years from now, you share responsibility for a loved-on whose mind and/or body is falling apart, you will wish that today you had started to learn about that.

In 2022, the current state-of-the-art is the book Being Mortal:  Medicine and What Matters in the End by Dr Atul Gawande.

This book is about our struggle to cope with the constraints of human biology.
Where our current medical power to control human biology is finite.

[ This book is the opposite of the poem:
  Do not go gentle into that good night,
  Old age should burn and rave at close of day;
  Rage, rage against the dying of the light.
  …
      — "Do not go gentle into that good night" by Dylan Thomas. ]

[ Or maybe this book is a compromise effort — an effort to:
  Do what we can,
  with what we have,
  where we are.

    — Teddy Roosevelt, 26th President of the 🇺🇸 USA, slightly reworded by me. ]

This article is basically my notes from this book.

[ Notes from me alone appear in spaced-out, bold square brackets. ]

Perhaps someday, there will be better materials.  But today, this is what I know:

Relationships with anyone

Really 👂︎ listen to people:

Desires …

Socioemotional selectivity theory:

Terminally-ill people want to:

Thus, we attempted to create care systems that lets people do this …

Closing phase of life

Remember the narrowing focus, to here and now – the people and experiences near us.

A mounting series of crises, from which medicine can offer only temporary rescue.

[ With 📱︎ 911, or ] in the 🏥︎ ER/ED or hospital, you may lose all control over your care:

Review sections on Hospice treatment priorities above, and Lessons learned below.

[ If it applies, review the Dementia Road Map:  A Guide for Family and Care Partners.  Adobe Acrobat Reader file  ]

Random statistics …

63% of doctors overestimate future survival time, by an average of 530%!  Only 17% of doctors underestimate future survival time.

Risk factors for falling (and breaking your hip):

Cancer costs are U-shaped:

25% of Medicare spending is for 5% of patients, in their final year of life.

More than half of those living in 3-Stage Retirement Villages 3SRVs run through their savings.